After only one night home together, it seemed too soon to load up and go back to Seattle, but apparently cancer waits for no one. Jamie took her first shower at home this AM using a shower bench I bought for the tub upstairs. I am sure glad we got that finished up this year. I couldn’t imagine her trying to use that dark and dirty unfinished bathroom downstairs we loving refer to as the “construction bathroom”.
As for the shower bench, it wasn’t cheap, so I am going to try to sell time shares. All you guys over 50 should really think hard about it. For $10 buy in plus annual maintenance fees, you could get full benefit of this high quality appliance, at a fraction of the total purchase price.
So, back to today’s voyage;
Being the sort of organizational nut that I am, I insist on traveling fully equipped to make Jamie comfortable under any circumstances that may arise; including spur of the moment overnight stays. Thus I have laid out a comprehensive strategic plan that includes,
Overnight bag; with spare clothes, medication bag and toiletries
Entertainment back pack; with DVD’s, laptop, I pod, headphones, magazines, crossword puzzle book, paperback novel
Comfort basket; blanket, pillows and neck pillow
File box; includes medical records, hotel maps and other misc paperwork
Zippered pad folio / binder; with business card organizer, notepad, pen and current med list and other paperwork
Snack cooler; Food and beverages to ensure hydration and a full stomach for meds
So I load all this up, not forgetting the most important item, Jamie. With plenty of time to spare and the clinic address pre programmed into the navigation (we have only been there from the north side via UW), we set off. Jamie was a trooper, I did my best to give her a smooth ride, but with every bump in the road I could see her grimace and clutch her stomach.
We made it to the Seattle Cancer Care Alliance (SCCA) in a timely fashion and proceeded directly to radiology on the second floor. Thinking that we were early, I left Jamie in the waiting area and stepped around the corner to make a couple of calls. Still a few minutes before her schedule appointment, I returned and found her gone. A bit frantic I went to the receptionist and asked her if I could join my wife in the back. She phoned to whatever room Jamie was, but was told that it was too crowded. I took a seat right next to the door, and attempted to calm myself by reading a USA Today I found on a coffee table (apparently both the housing market and the pornographic DVD markets are both a bit slow, stocks are on the upswing though). After half an hour I am just about over the edge and a technician walks out the door. He strolls right pass me and when he is about 2/3 of the way to then opposite end of the waiting room, I think I hear him call “Crase”. I don’t know why I hesitated, but it took a minute before I replied “right here”.
He escorted me to an interior room where I found Jamie comfortable reclining in the medical equivalent of a lazy boy, covered in warmed blankets. Apparently the nursing staff had taken pity on her and allowed her to stay in the back room, instead of sending her out to the lobby to “enjoy” her berry / barium smoothie.
I was offered a folding chair alongside, where for the next hour I got a first hand look at the efficiency and professionalism this place has to offer. I won’t beat up our local outfit too much, but compared to our first experience her in Olympia, this was the difference between first class and Greyhound. Jamie got her Barium down, IV in and then she was whisked off very briefly for the CT scan. Although she had to remove anything metal, unlike Olympia where she was forced to disrobe and wear one of those revealing hospital gowns, she could wear her normal clothes in. After the scan they pulled the blood directly from the IV, thus minimizing needle pricks. A few minutes of observation and we were off to have a sandwich in the cafeteria.
After lunch we met with Heidi form Goff’s office, where she gave us a good briefing on the next week’s chemo and gave us a calendar for future visits over the next few months.
Although this week has been a bit hectic, it looks like for the rest of the summer we will be spending every other Thursday afternoon and Friday at the SCCA. So hopefully we can have some fun and try a few swank downtown Seattle hotels while we are at it. Any recommendations?
Dinner tonight was ala Martinez, keeping us right on track with the feeding / med schedule when we got home. It was nice to come home to a little fresh food in the fridge and not have to shop right away. Thanks Sharon and Pete. Jamie is enjoying the candy as well, although I have to abstain, apparently all those cookies have caught up with me for my pants are a bit tight.
As Jamie said in her post, our sleep schedule has been a bit screwy making sure that Jamie gets medication every 3 hours on a full stomach. And being the sort of worry wart she is, she sleeps for about 90 minutes before she starts asking me “what time is it?”. Then for the next hour and a half, she flops around, anxious that she will over sleep and let the pain get ahead of her.
So for tonight I have applied my managerial skills and invested in a digital timer. Hopefully this will give Jamie the piece of mind to sleep a little more soundly, knowing that she won’t sleep too long and I won’t be so grumpy.
We are glad to be back home and be with Shorty again. However he has not taken the presence of his stuffed imposter well, and I am told when he first entered the house and saw it on the back of the couch above Jamie, he went crazy, trying to climb over her and attack it. Just a warning Get Well Bear, you better steer clear as well.
19 comments:
The Fireplace Suites at the Alexis Hotel, and any waterview room or suite at the Inn At The Market are highly recommended for downtown swank accomodations.
You've probably heard this before, and I imagine you'll hear this again, but these posts offer such hope an inspiration. Most of all for Jamie's good health and recovery, but also just for our daily lives. Just today I was peeved at someone dazing off at a stoplight, certainly not worth stressing about all things considered and likely ignorant of that person's situation.
When all is back to normal and Jamie is well and things have settled down, I hope you'll consider publishing this blog in its entirety...
~Brian
John & Jamie,
Your posts are great! I love reading your commentary, and it's great to see how you guys are finding the lighter side of all of this. More than anything, that will help in the healing process. My husband is an arm-chair hypnotherapist... one of his hypnotherapy books (written by an MD... though I don't have the exact source because I'm at work right now :) has a section on dealing with pain and disease. He was reading it to me the other night... I thought I'd paraphrase it for you. It said something along the lines of:
* 10 minutes of laughter has the healing equivalent of 2 hours of sound sleep
* clinical studies have been done that use hypnotherapy in surgery to help the person find a "laughing" place in their subconscious mind prior to, or even in lieu of, anesthesia; those with this therapy recover and heal faster than those without this therapy
So the long and short of it is, keep smiling, keep finding the humor, and laugh as much as possible!
Take care!
~ Shanan
We stayed at a Kimpton hotel in SF, and I've heard good things about the Hotel Monaco and their other locations in Seattle. They are all boutique style with lots of personality (and a wine reception each evening which left the 50+ crowd hammered in the lobby each night. But I digress...) Glad that the SCCA was not a let down from the attentive treatment at UWMC!
The cookies are now winging their way across the country to you. I sent them today by priority mail, so the should be there by Saturday or Monday at the latest.
The digital timer is definitely your friend. I did the same thing when my mom got out of the hospital and walked around with it clipped to my jeans. However, after a couple days anything that beeped (dryer, microwave, etc.) made me jump and scramble for pill bottles.
Finally, I'll second the Kimpton reccomendations and add the Hotel Andra (very New York boutique hotel-ish).
Ali
Ok, John. You're borderline "pushing" it!! The suggestion that "those of us over 50 buy shares in the bathseat" reminds me a bit too much of your father's remark about how you, he, and I represent three "generations" (with the implication being that he and I are of different generations since I am several years older than he is!). Then again, I almost had to hit an airport employee who recently insisted I get in his wheelchair to make a plane change. And now this bathseat share thing. I think I'll just hang in there and hope to inherit my mother's. I'm pretty sure your mother wouldn't fight me for it! (since she also is many years younger than I and probably is considered to be in your father's generation.)
Thanks so much, Anne, for adding to this whole over-fifty-bashing with your observation that the 50+ers were guilty of not being able to handle their wine and wound up passed out in the hotel lobby!! I wonder why I'm feeling so defensive these days!!!!! Could it be because 50 sounds so incredibly young to be any more? (Please, you barely-more-than-teeny- boppers, this is all in fun!)
I'm glad you two are reuninted with Shortie. I don't blame him for not wanting to share his people with a bear (even though the bear has major significance). Shortie is a very smart person and will make the necessary adjustments. If he needs some attitude adjusting, Just call Sharon!!. Are the bunnies home, too?
I think about all of you frequently and hope your recovery goes like clockwork, Jamie.
I wish I could recommend a posh hotel in Seattle but you know my experience in that sort of thing is pretty much limited to Motel Six and (when I want to really impress someone) Super 8.)
Love,
Pat & Awful Audrey
I just want to make a formal request for some vintage Jamie photos on the website... Either that or the softball photo gets moved up on the page. You didn't even have bad hair -- there must be some more incriminating photos somewhere? Middle school shots perhaps?
Glad to hear you're back home.
Check out Hotel Andra downtown if you want swank with real sense of style and comfort.
Hope things keep getting better.
=shane=
How in the hell did that oversize rat get up on the couch to attach anything??? Are you bringing wood home to make ramps for it?? Kathie and I are very happy to hear that you are doing well. Our thoughts have been with you, and am happy to see they've been heard by someone at least. Ohh John, the housing market I'm not sure of but the pornographic DVD market is down because of YouTube and Limewire, hahaha. Continue to rest and take your meds and hope to see you soon at work (I know for a fact that Kenny will be THRILLED when you come back). All our thoughts, Dan Mezek
Jamie,
I absolutely love your haircut! It looks like it is a lot of fun and easy!!
Jamie, I caught you reading the blog tonight and so to all the fans of Jamie and John, keep them coming. They make her laugh.
It was wonderful to hang out for a few minutes tonight. Hong Em, Yung, and Valentina (spelling, sorry?) were a nice surprise. I miss seeing them and going to their restaurant. They are wonderful friends and so thoughtful!!
I know tomorrow will be a long day for you, but try to take it all in stride. Get some rest and know we will all be thinking about you.
Love always,
Jennifer
Yeah!!! Love it Jamie. Everyone who has met you remembers your beautiful blue eyes, and that is one of the best parts of a short cut. You look great!
I am bringing lots of different foods with me tomorrow morning when I pick up Shorty, and hopefully something will look good to you. I even found some tasty looking low-fat options for John since all the cookie-love is going to his waist :) And we are on standby for anything you guys might need this weekend.
We'll be thinking of you and are comforted by the fact that you are in good hands -- personally and medically.
Wilson sends a squeeze and a big wet kiss. We love you!
Lora made moussaka for you guys tonight and I'm whipping up a (good) pumpkin pie for you Jame, since the slice at UWMC was a let-down.
Anne...I'm digging through my photo albums now for "vintage" Jamie (and John) shots. Coming soon to a blog near you...
Hey, wait a minute, do I look like a whips and chains type of person!?! Audrey, set your Mama straight!
Jaime, it sounds like you're in very caring hands at SCCA. I'm sure it's very reassuring and hopefully will diminish the anxiety. Hope your chemo treatment speeds by and you're back home before you know it. (And enjoying all the good food headed your way . . . ummm, what time is dinner?)
Your new "do" is really cute! Please have John take a picture before you leave in the morning and post it on the blog.
You have a lot of good vibes going with you tomorrow!
Sharon
Hey, Jamie, everytime I tell AJ I like her hair she says, "Of course you do!!" LOL So I have a prejudice (just one! LOL) I like short hair. I loved your long hair too, and had no idea just how great you would look with short hair!! Thinking of you and looking forward to being home to see you.
Love, Mom C
Jamie,
It was a joy to see you yesterday and give my razor quite the workout on your hair. Your new do can open up many possibities on what to do when you have your new hair come in.
It was great that you could stay and just hang out with your mom without people poking on you. I'm sure she enjoyed it as much as I did.
Everybody at the salon are prayers your way.
Wendy
Alright Katrina. That's what I was looking for... Love the "iced tea" photo (if that's what you girls called it back then) and enjoyed seeing John again in full beard.
Jamie I hope when you work up and looked at your new do this morning that it helped you feel like the confident, ass kicker you are! (I feel this is a perk of short hair that no one ever talks about). You are ready for battle sister and we are right here with you!!
Love,
Anne
Love it, love it, love it! Love the hair Jamie!!!
...oh yes...that "iced tea" photo at the bottom of the right coloumn was taken when we were 4 girls in the one-bedroom apartment I mentioned before....but I remember taking that pic and I don't think that was iced tea! :)
By the look on their faces, it was definately not iced tea.
Jennifer
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