I had my appt with Dr. Goff on Monday. All Clear!! All my tests came back negative and she doesn't know why I'm having the pain. Her best guess is my nerves are working double time and driving me crazy. She prescribed an anti-seizure medication that is used to calm nerves. I have to work up to the full dose and have to be really careful coming off the medication as well. Hopefully it will help with the neuropathy in my feet as well. I don't have to have a blood draw for three months and no scans for six months--what a relief!
I had my first hair trim today!! Thanks Wendy for squeezing me in. It feels great, but we have all agreed my hair is strange. I call it "baby puppy fuzz". Wendy thinks maybe it is trying to be curly, but it gets confused. Oh well, at least I have hair to trim :)
I hope many of you can come join us in the Relay for Life. It's going to be great fun, and would be even better if all my loyal readers were to participate. I will try to keep reminding all of you to sign up!! See post below for details.
Tuesday, April 29, 2008
Monday, April 21, 2008
Relay for Life — Come Walk with Jamie!
Katie Stoll (of Katie and Brian) started a Relay for Life team in Jamie's honor to get Jamie's "team" together to celebrate her success in clobbering cancer. Sign up right here!Relay for Life is a 24-hour relay fund raiser for the American Cancer Society. You can find more info about it right here. I've participated in the Relay before, and it's a really fun and inspiring event. Team members (walkers) are needed for relay shifts, and at the event you can camp out overnight, or just show up for a walking shift and visit the campers.
The event begins on Friday, June 20 at 6:00pm and will last until Saturday, June 21 at 6:00 pm. It will be in Tacoma at the Franklin Pierce High School Track - 11002 18th Ave. E.
Tacoma, WA 98445-5200. On Friday night there will be a survivor lap at 6:00 pm for cancer survivors, and a Luminaria Ceremony of Hope at 10:00 pm. Walkers who circle the track all night walk by the light of the luminaries.
You can make a Luminaria donation to the event or to Jamie's Team in honor of anyone whose life has been touched by cancer — just click right here.
Join Jamie's Team to participate in the Relay at her Team Page — get there by clicking right here. If you're interested in joining the team to walk, but have yet to sign up, please leave a comment on this post so Katie knows how the team is shaping up. Anyone can join the fun, so mark your calendars, and get ready to lace up your walkin' shoes! We'll see you there!!
Lost Modesty
Today I had my "aspiration" at the UW radiology department. Well that is what it was supposed to be. I ended up having a biopsy instead. After mapping the area on my tush, with many rides in and out of the CT machine, no fluid came out of my "pocket". Instead the Dr had to change strategies and take a core sample from the lump that is pushing on my bum area as it was not a fluid pocket as was suspected. And as you can see I can be very detailed about this, because the anesthesia did not work and I was pretty conscience thru out the entire procedure. Believe me, I wish I wasn't. They actually had to stop in the middle of it to request the use of more drugs, because they had already surpassed the normal dosing for most people. I still hold the staff at the UW in high regard, but today was not the greatest of procedure days.
I had to stay after the procedure in the recovery area for a little bit, where I scared a nurse by dosing off which caused my oxygen levels to set the alarm off on the machine. Once I was somewhat stable, they sent me back down to 4 South, to wait out the after effects of the drugs. I guess I really was a special case today, because the nurse told me to order lunch, which John did only to have the nurse rush back in to tell me they didn't want me to eat until about 5pm and I needed to lay still until that time as well. Mind you I hadn't eaten since 9pm the night before, I was pretty hungry. All this while during the recovery, I had to keep baring my bum, so they could check on it. It's getting to the point, it doesn't bother me to have male nurses. I've lost all my modesty. One day I hope it will return (LOL)
Last Thursday, many of you know I had a PET scan, which came back clear with no indication of activity in the "pocket" in question. We had a bit of a snag when the nurse was trying to put my folic catheter in. In the end, I did the PET without it and found out the Nuke Techs actually prefer to run the PET without one. I'm hoping the good outcome of the PET will be some sort of indication that all is well with whatever they took out today.
I will try to post what I find out soon, but I have my three month check-up with Dr. Goff on Monday, so I may not find anything out until I talk to her. My nurse, Heidi will probably call and give me an update. She is so great about making sure we know all the details as soon as she finds anything out. I love that about her...always thinking about the patient and their state of mind.
I hope all is well with all of you--I will let all of you know any info I get as soon as I get it!!
Lots of Love,
Jamie
I had to stay after the procedure in the recovery area for a little bit, where I scared a nurse by dosing off which caused my oxygen levels to set the alarm off on the machine. Once I was somewhat stable, they sent me back down to 4 South, to wait out the after effects of the drugs. I guess I really was a special case today, because the nurse told me to order lunch, which John did only to have the nurse rush back in to tell me they didn't want me to eat until about 5pm and I needed to lay still until that time as well. Mind you I hadn't eaten since 9pm the night before, I was pretty hungry. All this while during the recovery, I had to keep baring my bum, so they could check on it. It's getting to the point, it doesn't bother me to have male nurses. I've lost all my modesty. One day I hope it will return (LOL)
Last Thursday, many of you know I had a PET scan, which came back clear with no indication of activity in the "pocket" in question. We had a bit of a snag when the nurse was trying to put my folic catheter in. In the end, I did the PET without it and found out the Nuke Techs actually prefer to run the PET without one. I'm hoping the good outcome of the PET will be some sort of indication that all is well with whatever they took out today.
I will try to post what I find out soon, but I have my three month check-up with Dr. Goff on Monday, so I may not find anything out until I talk to her. My nurse, Heidi will probably call and give me an update. She is so great about making sure we know all the details as soon as she finds anything out. I love that about her...always thinking about the patient and their state of mind.
I hope all is well with all of you--I will let all of you know any info I get as soon as I get it!!
Lots of Love,
Jamie
Friday, April 11, 2008
Minor Setback--Fast Action
I'm sorry for not posting a picture. I need to get John to take a photo to post. The hair is coming in strong!!
I've had a minor setback this week. I started having some pain this week and the usual drugs were not cutting it, so on Wednesday I called my favorite nurse, Heidi. As usual, she responded very quickly and told me I needed to come up and be seen. The next morning at 10am, I was being examined by Barb Silko, a very competent nurse practitioner, who sees patients during recovery after surgery, so you don't have to see the "boss" every time you go in. Barb did a "thorough" exam, and proclaimed she couldn't "feel" anything, but wanted to discuss the option of having a CT scan with Heidi.
I was on my way out of the office, when I got sidetracked talking to Tina, the team coordinator, regarding a change in my next scheduled blood draw. We were just about to leave, when Heidi caught us. She had wrote the requisition for the CT scan, and had Tina call downstairs to get us in that day! Talk about service. About 20 minutes later, I was chugging down the Lumen (barium smoothie) which was less thick than the regular stuff. At 12:30, I was laying on the table getting ready to start the scan.
Today, I got a call from Heidi with the results. She assured me they didn't see anything suspicious, but that I've had a pocket of fluid by the area where they did the bowel resection. It has always been very small (17mm x 19mm), but that it has grown a little bit (23mm x 24mm) and that it was likely causing the discomfort that I have. Dr. Goff looked at the scans and wants me to have a Pet Scan to make sure nothing "lights up", since my last one in November. She also suggested that the scans be sent down to the interventional radiologists to look at to see if they will be able to surgically drain the pocket. She is somewhat skeptical that they will be able to do it, because of its position, but wanted it to be the first choice. I think she would have to go in surgically if they can't do anything about it.
I am so grateful that I was lucky enough to find Dr. Goff and have her involved in my recovery. She and her team are the most wonderful people out there! I highly recommend the SCCA to everyone I talk to. I don't know where I would get such great and fast care like I receive from the SCCA.
I will keep you all posted about what I find out this next week. Wish me luck!!
I've had a minor setback this week. I started having some pain this week and the usual drugs were not cutting it, so on Wednesday I called my favorite nurse, Heidi. As usual, she responded very quickly and told me I needed to come up and be seen. The next morning at 10am, I was being examined by Barb Silko, a very competent nurse practitioner, who sees patients during recovery after surgery, so you don't have to see the "boss" every time you go in. Barb did a "thorough" exam, and proclaimed she couldn't "feel" anything, but wanted to discuss the option of having a CT scan with Heidi.
I was on my way out of the office, when I got sidetracked talking to Tina, the team coordinator, regarding a change in my next scheduled blood draw. We were just about to leave, when Heidi caught us. She had wrote the requisition for the CT scan, and had Tina call downstairs to get us in that day! Talk about service. About 20 minutes later, I was chugging down the Lumen (barium smoothie) which was less thick than the regular stuff. At 12:30, I was laying on the table getting ready to start the scan.
Today, I got a call from Heidi with the results. She assured me they didn't see anything suspicious, but that I've had a pocket of fluid by the area where they did the bowel resection. It has always been very small (17mm x 19mm), but that it has grown a little bit (23mm x 24mm) and that it was likely causing the discomfort that I have. Dr. Goff looked at the scans and wants me to have a Pet Scan to make sure nothing "lights up", since my last one in November. She also suggested that the scans be sent down to the interventional radiologists to look at to see if they will be able to surgically drain the pocket. She is somewhat skeptical that they will be able to do it, because of its position, but wanted it to be the first choice. I think she would have to go in surgically if they can't do anything about it.
I am so grateful that I was lucky enough to find Dr. Goff and have her involved in my recovery. She and her team are the most wonderful people out there! I highly recommend the SCCA to everyone I talk to. I don't know where I would get such great and fast care like I receive from the SCCA.
I will keep you all posted about what I find out this next week. Wish me luck!!
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