Wednesday, September 12, 2007

Third Time is a Charm

So I guess the world is waiting to see how things turned out.

Shortly before noon, our day nurse began to set things up to access Jamie’s abdominal port and get things rolling. After three attempts, and with the help of our now favorite chemo nurse Christie, they got the needle set and flushed the port for the first time with a little saline. Over the next few hours Jamie took on three liters of fluid to her abdomen, along with plenty more via standard IV (chest port).

The whole shaking table was a cancer myth, but once the chemo portion of the infusion was done, Jamie spent the next two hours changing positions, head up / feet up / roll right / roll left, at 15 minute intervals.

While running an errand between turns, I had the opportunity to speak with nurse Michael. He seemed genuinely happy to see me and made absolutely no mention of the sushi-vomit episode. He accompanied me back to the room and he and Jamie caught up a bit, Michael sharing a few tidbits from his female companion’s cancer experience and how she made best use of being bald at Halloween.

Note; Michael actually uses the term “partner” to describe this woman, but I used the above phrase for the benefit of our more rural constituency who might interpret this to mean “gay” which Michael obviously is not.

Anyway, Michael is just one of the many genuinely caring people who have helped us at UWMC. I saw him again in the hall as I ferried our personal effects to the car and he was returning from the family lounge. Michael had washed one of his patient’s clothes because he was a transient with no family or friends to assist him. I am touched by how these people who are already doing a demanding and often unpleasant job, go even further to bring comfort to their patients.

We got things wrapped up a little after 4 pm, and stopped by to informally check out with Christie who was charge nurse for the day. Among other gossip we were sad to here that May is no longer at UWMC, as she moved to NY shortly after her wedding this summer. We wish her the best and can not thank her enough for her efforts. I just hope that she somehow gets word about Jamie’s recovery and knows what an important role she has played.

So from UWMC, it is just a couple of minutes to the Silver Cloud, our favorite cancer vacation hotel. I got Jamie settled in, truck unloaded and headed out for a quick ride on the Burke-Gilman trail towards Fremont. Although I did not encounter any nude cyclists, I did see many other intriguing things, a Vespa shop, the Hales brewery, and a score of other interesting business, construction sites and parks.

By the time I got back to the room, I had just a few minutes to relax before Joel, Katrina, Madeline and Erik arrived. The kids were fascinated by my bike, which was parked in the room and so soon Katrina was wiping chain oil off of Erik’s hands and face. For now he is harmless, but his obvious lust for the mechanical will make him a threat once he learns that you can tear anything down with an adjustable wrench and pliers.

We ordered pizza online from Zeeks and then Joel, Madeline and I set out to buy some beverages. Despite her generally adventuresome persona, Madeline has obviously been scarred by our past outings and whined for her mother for a good 15 minutes. Once she became confident that she would not be forced to operate heavy equipment or engage in some other frightening activity, she regained her confidence and soon was running up and down the aisles of QFC.

After dinner Katrina left us with some candy sushi and great cookies, so after I did some sampling we settled into bed for a restful night’s sleep without residents and nurses. We both slept well and come morning I was refreshed. I ate the free breakfast and then returned to the room with a waffle for Jamie. She ate it all, but was still sleepy, so I let her go back to bed for a bit. I went out on my bike again, exploring a bit more then stopped at the Metropolitan Market to fulfill Jamie’s request for fruit.

The ride home was uneventful, Jamie slept most of the way home and then unloaded and went straight to bed. Despite some prior discussion about a delay in symptoms because of the absorption rate of the IP chemo, she is on the same “schedule” as the previous regiment. Both the remainder of yesterday, through the night and today have been spent sleeping, with only short breaks to eat, take meds and have a little conversation with me.

Tomorrow I made her promise we would go to Starbucks and lunch, and hopefully we will turn the corner for the week. As much as I hate to see her suffer, I think we were encouraged by last weeks CT scan results and feel positive about pushing forward.

Shorty has been at my parents’ house since Saturday and apparently has made no indication of wanting to return home. I am sure he is enjoying company of Sammy and Stella as well as a few extra “cookies”.

Thanks to both Jen, Katelyn and the Healy’s for taking care of GB and BB. I also want to thank Joan specifically for helping with Jamie’s injection last night. Although capable, the task is still a great effort for me and so her professional touch is always appreciated by myself, but probably even more by my patient.

10 comments:

Anonymous said...

John

When you have perfected the injection it will hurt you more than Jamie. Keep practicing.
Jamie I am glad to hear you are home and getting your rest.

Anonymous said...

John your updates and insights are always welcome. It sounds like your bike has been a great relief to you.

Jamie- Keep up the hard work. Get plenty of rest and don't worry about anything. It sounds like John has everything under control. It was great to hear about Nurse Michael. I really liked his professionalism and his kindness to help out in any way possible. Thanks for the update. As for nurse May....It is a terrible loss for UWMC but a gift for New York. If you get in contact with her, tell her hello. Again, I felt like she always went above and beyond her duties.

I think about you often and wonder what you are up to. Not wanting to wake you from your sleep, I check the blog or call MOM to see if she has heard from you. I hope to talk with you soon. Katelyn misses you very much!
Love,
Jennifer

Katrina said...

Glad to hear this new IP round's results are "business as usual" and Jamie's taking it in stride. I'm not surprised - you looked great & strong, as usual, on Monday (and your new hat is so cool).

Thinking about you often and sending you lots of healing vibes. So happy that you can rest, sleep and get well.

Gather your strength my friend...we have stomping, sampling, and shopping to do come Saturday!

Unknown said...

Jamie,

IP round 1 is now behind you! Glad to hear you are doing well with your treatment. But with your positive attitude, I would expect nothing less! :) Hope you enjoy your Starbucks and lunch!

~ Shanan

Anonymous said...

I had SO many calls yesterday asking if I had heard from you, just so you know how important the blog is to all of us. We hate to disturb you, but want to be in the loop every moment. Your privacy has most certainly gone out the window!! Just know it is because we love you and want to help.......
either give us a task or tell us to take a hike! LOL

We are all holding our collective breath for the next few days to pass well for you. All our love...

Love, Mom C
PS Shorty is mad and wants to come home where he is numero uno! All he wanted to do was play in the sprinkler and Sam tattled on him!!
Stella whines all the time about having to share attention (youngest child, you know!) It's a doggy daycare world!! Takes Pete an extra 15 minutes to get ready for work because he is shadowed everywhere by 3 dogs!

Anonymous said...

Yes the world was waiting to hear how the IP went.

Hope Jamie's few days after weren't too rough and she can get back to the pool and swim laps.

As always, John, thanks for the timely updates.

Sharon

Anonymous said...

Thanks for the update John. Could you feel the mounting demand for a blog post or what?

Hope you are feeling good enough soon to read these comments Jamie. It is good to know that you just got one step closer to your recovery.

See you very soon -

Love,
Anne

Anonymous said...

Way to go, Jamie!! We were right here in the outer regions of cyberland (or as John so delicately described us, "the rural constituency")patiently waiting for news of the first IP treatment. Praise to the Blog Goddess!!

Keep up the good work you two. John, I wish we could get you to write kind of a daily column!

Take care and know that we're always out here and sending you healing thoughts.

Love,

Pat and Audrey

jkluginbill said...

Sounds like things are going well and under control. We read your posts and are glad to feel so connected. You (both) are constantly in our thoughts! Keep fighting!

Anonymous said...

Wow, this treatment sounds like a full time job! Hope you are finding some time to relax with this busy schedule you are keeping. Maxine and I have been going on walks to Bigelow often on Mondays and Fridays and have really wanted to call you up to see if you are up for meeting us. Sadly though, either Maxine, me or both of have been a little under the weather for a few weeks with a cold, and we do not want to share our germs with you! Hopefully we will both be well enough for a visit soon. We also would like to take you guys to breakfast soon. Do you still love Otto's french toast?

Stay strong, Jamie! You are so amazing!!

Love,
Katie